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RSD, Chronic Pain and Depression
Where your 'Pain is Understood',
This groups serves the
function of a support group and friend who
understands the explicit needs of chronic pain sufferers everywhere. It
is our endeavor to provide individuals a support system that is simple
to access and available 24 hours a day. RSD, Fibromyalgia, DDD, Peripheral
Neuropathy - But we are not our illness. I founded this group so people
would not have to suffer alone and try to make sense out of not knowing
what is available to them as far as treatment options, their rights,
disability claims, attorney needs, housing etc. A diagnosis of RSD/CRPS
is usually met in a few ways, either the person has never heard of it
(as in my case), the person is terrified and thinks they are dying, the
person is under the assumption or told they are crazy or they
understand the ramifications and seek appropriate treatment. This group
was developed to support the entire person and their family, friends
and caregivers with the challenges of living with chronic pain.
RSD, Fibromyalgia, Sjogren's
Syndrome, SLE and Diabetes. Again, my diseases are not who I am, they
just made me know what's in my heart
and soul to share! Summer and I have known each other for almost seven
years. We met at our state capitol fighting for support of the mental
health system. I was living in an assisted living center until very
recently when my daughter and I bought a house and are now living there
together. This support group has empowered me to develop my
independence. Through the support and knowledge based articles that
have always been available but somewhat unattainable, I learned where
to go and how to obtain the assistance I needed to become independent.
I also received emotional support and much understanding which boosted
my self-esteem to a point where I believed I "could do it". Nothing is
more valuable than that! I am a manager now because I need to pass that
on to others, to share what has been given to me and hopefully that
empowerment will grow and one day all people with disabilities will
stand proudly and proclaim their rights and be treated with dignity and
respect as they should!
~ Thank you for creating this
beautiful website. Each
and everyone I have met is a blessing. Thanks for your warm welcome.
~ J and I want to thank you just for being you we do love you and will
keep you in our prayers.
~ Your site is very nice. I
enjoyed visiting it. Bless
you for providing a helpful resource for people who suffer from chronic
pain and the various conditions such as RSD which cause it. I placed a
link to you on InfoMIN under Reflex Sympathetic Dystrophy (RSD) on the
RSD page.
~ Thank you for requesting this
review, It is always a
real pleasure exploring your group. You have a beautiful group. Please
look for your well deserved awards later today.
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