Welcome_to_RSD_Support

 

RSD, Chronic Pain and Depression

Where your 'Pain is Understood',
your 'Feelings are Respected'
and your 'Worth is Applauded'!

Flower


Who We Are

This groups serves the function of a support group and friend who understands the explicit needs of chronic pain sufferers everywhere. It is our endeavor to provide individuals a support system that is simple to access and available 24 hours a day.



Meet the Managers

Summer

 Summer
  Manager/Founder

RSD, Fibromyalgia, DDD, Peripheral Neuropathy - But we are not our illness. I founded this group so people would not have to suffer alone and try to make sense out of not knowing what is available to them as far as treatment options, their rights, disability claims, attorney needs, housing etc. A diagnosis of RSD/CRPS is usually met in a few ways, either the person has never heard of it (as in my case), the person is terrified and thinks they are dying, the person is under the assumption or told they are crazy or they understand the ramifications and seek appropriate treatment. This group was developed to support the entire person and their family, friends and caregivers with the challenges of living with chronic pain.




Normalee
Co-Manager   

Normalee


RSD, Fibromyalgia, Sjogren's Syndrome, SLE and Diabetes. Again, my diseases are not who I am, they just made me know what's in my heart and soul to share! Summer and I have known each other for almost seven years. We met at our state capitol fighting for support of the mental health system. I was living in an assisted living center until very recently when my daughter and I bought a house and are now living there together. This support group has empowered me to develop my independence. Through the support and knowledge based articles that have always been available but somewhat unattainable, I learned where to go and how to obtain the assistance I needed to become independent. I also received emotional support and much understanding which boosted my self-esteem to a point where I believed I "could do it". Nothing is more valuable than that! I am a manager now because I need to pass that on to others, to share what has been given to me and hopefully that empowerment will grow and one day all people with disabilities will stand proudly and proclaim their rights and be treated with dignity and respect as they should!

Awards of Distinction
 
Disability Network Inc.

Joining Hands Around the World

Disability Network Award 2007

Disability Network Award 2008


What They Say

~ Thank you for creating this beautiful website. Each and everyone I have met is a blessing. Thanks for your warm welcome. ~ J and I want to thank you just for being you we do love you and will keep you in our prayers.


~ Your site is very nice. I enjoyed visiting it. Bless you for providing a helpful resource for people who suffer from chronic pain and the various conditions such as RSD which cause it. I placed a link to you on InfoMIN under Reflex Sympathetic Dystrophy (RSD) on the RSD page.

Have a gentle day, Lois
(Lois Randall, author, Randall Chronic Pain Scale)


~ Thank you for requesting this review, It is always a real pleasure exploring your group. You have a beautiful group. Please look for your well deserved awards later today.


~ Your group is always so nice. I have looked at everything. Next month you can apply for the next set. Thanks for letting me look at your group. You got all A's Your group is so nicely made. And very helpful for others. Keep up the great work.


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